Living with Hypermobile Ehlers-Danlos Syndrome (HEDS) can feel overwhelming, especially when battling fatigue and nonrestorative sleep. Individuals often find these symptoms overshadowing their daily activities, detracting from their quality of life. Recognizing the links between HEDS, fatigue, and sleep issues is crucial for finding effective management strategies that can lead to a more fulfilling lifestyle. The Nature of Fatigue in HEDS Fatigue in HEDS is much more than me

Craniocervical instability (CCI) and hypermobile Ehlers-Danlos syndrome (HEDS) can greatly affect daily life. At first, these conditions may seem unrelated. However, emerging research shows a significant link between CCI and the risk of developing frozen shoulder, also known as adhesive capsulitis, in individuals with HEDS. Understanding Craniocervical Instability Craniocervical instability happens when there is abnormal movement between the skull and the upper cervical spine

Ehlers-Danlos Syndrome (EDS) is a group of disorders that affect connective tissues, leading to various symptoms. These include joint...

Ehlers-Danlos Syndrome (EDS) and Thoracic Outlet Syndrome (TOS) can greatly impact an individual's daily life and well-being. Although...

White matter brain lesions are more than a medical curiosity; they are becoming a vital focus within the study of Ehlers-Danlos Syndrome...

Hereditary Ehlers-Danlos Syndrome (HEDS) is more than just a name; it is a connective tissue disorder that can alter the daily lives of...

Hypermobility Ehlers-Danlos Syndrome (HEDS) is a connective tissue disorder that affects the body's ability to produce collagen. This...

Hypermobile Ehlers-Danlos Syndrome (HEDS) is a connective tissue disorder that can have a profound impact on daily living. Individuals...

Lymphedema can seriously affect the daily lives of those dealing with it, and this challenge is even more significant for individuals...

I am one of the "lucky ones" with the trifecta of EDS, POTS, and MCAS. I take tons of allergy and asthma medications but still have a...

Ehlers-Danlos Syndrome (EDS) impacts countless people worldwide, affecting their connective tissues and causing various symptoms that can...

Ehlers-Danlos Syndrome (EDS) captures the attention of many individuals and families due to its challenging nature. For those living with...

Early onset osteoporosis and Ehlers-Danlos Syndrome (EDS) can drastically affect a person's life. While osteoporosis is often associated...

Postural Orthostatic Tachycardia Syndrome (POTS) is a condition that significantly impacts the autonomic nervous system. It can create...

Vocal cord dysfunction (VCD) is a serious concern for many individuals with Ehlers-Danlos Syndrome (EDS). EDS is not just about joint...

Bladder issues can be a considerable yet often ignored concern for those living with Postural Orthostatic Tachycardia Syndrome (POTS)....

Vision problems in Hypermobile Ehlers-Danlos Syndrome (HEDS) are often overlooked. While many focus on the physical symptoms like joint...

Living with chronic health conditions can be a challenging experience, especially when multiple disorders overlap. For many, the...

The Struggle for Rest After a long and exhausting day, I eagerly anticipate lying down to rest. As my body begins to relax, discomfort...

Small Fiber Neuropathy (SFN) is a serious condition that impacts the small nerve fibers in our bodies. It often leads to uncomfortable...