When a newborn struggles to breathe easily, it sets off alarm bells for any parent. In my family, this early sign was often the first clue that something more complex was at play. Many of us were born with a "floppy airway," a condition that made breathing difficult right from birth. At birth it was referred to as tracheomalacia. Over time, doctors connected this symptom to Ehlers-Danlos Syndrome (EDS), a genetic disorder affecting connective tissues. . What Is Ehlers-Danlos

Dural ectasia often appears in discussions about Ehlers-Danlos Syndrome (EDS), a group of connective tissue disorders. But is dural ectasia a clear diagnostic marker for EDS, or is it simply a common feature seen in many patients with the condition? Understanding this distinction matters for patients, clinicians, and researchers working with EDS What Is Dural Ectasia? Dural ectasia refers to the widening or ballooning of the dura mater, the tough outer membrane surrounding th

Living with Hypermobile Ehlers-Danlos Syndrome (HEDS) often means managing a variety of symptoms that affect the skin, joints, and connective tissues. One common concern for many with HEDS is the development of cracked heels and thick, dry calloused skin on their feet. These issues can cause discomfort and sometimes pain, impacting daily activities and quality of life. Understanding why these skin problems occur and how to care for them can help individuals with HEDS maintain

Adnexal torsion is a medical emergency that occurs when an ovary or fallopian tube twists, cutting off its blood supply. While this condition is uncommon in the general population, it raises an important question for those with hypermobile Ehlers-Danlos syndrome (HEDS): how often does adnexal torsion occur in people with HEDS? What Is Adnexal Torsion? Adnexal torsion involves the twisting of the ovary and sometimes the fallopian tube, which can cause severe pelvic pain, nause

Vertigo is a disorienting sensation that can severely affect daily life. For individuals with Hypermobile Ehlers-Danlos Syndrome (HEDS), vertigo is a common but often misunderstood symptom. Understanding these factors can help patients and caregivers better manage symptoms and seek appropriate care. What Is Vertigo and How Does It Relate to HEDS? Vertigo is the feeling that you or your surroundings are spinning or moving when they are not. It differs from general dizziness b

(unsplash photo) Hypoesthesia, or reduced sensation, is a symptom that can significantly affect people living with Hypermobile Ehlers-Danlos Syndrome (HEDS). Many individuals with HEDS experience unusual sensory changes, including numbness or decreased sensitivity in certain body parts. Understanding what hypoesthesia is and why it occurs in HEDS can help patients and caregivers better manage symptoms and improve quality of life. What Is Hypoesthesia? Hypoesthesia refers to a

Unsplash photo Concentration difficulties are a frequent challenge for many people living with Hypermobile Ehlers-Danlos Syndrome (HEDS). These issues can affect daily life in ways that are often overlooked but deeply impactful. Understanding how common concentration problems are in HEDS and the ways they influence everyday activities helps provide clarity and support for those affected. How Common Are Concentration Issues in HEDS? Concentration problems are reported by a sig

Unsplash photo Ehlers-Danlos Syndrome (EDS) is widely recognized for its impact on connective tissues, but many people with EDS also face challenges related to their immune system. One key player in this immune puzzle is the Immunoglobulin G (IgG) antibody. Understanding how IgG functions and its role in immune deficiencies linked to EDS can shed light on why some individuals experience frequent infections and how they might better manage their health. What Is Ehlers-Danlos S

Ehlers-Danlos Syndrome (EDS) is a complex connective tissue disorder that affects many aspects of a person's health. As patients with EDS age, they often face new challenges that can complicate their condition. One such challenge is the Pentad Super Syndrome, a cluster of five interrelated symptoms that can significantly affect quality of life. Understanding this syndrome is crucial for patients, caregivers, and healthcare providers to better manage aging with EDS. Illustrati

(Unsplash Photo) Ehlers-Danlos Syndrome (EDS) and Raynaud's Phenomenon are two conditions that affect many people worldwide. While they might seem unrelated at first glance, research and patient experiences show a connection worth exploring. Understanding this link can help those affected manage symptoms better and improve their quality of life. What is Ehlers-Danlos Syndrome? Ehlers-Danlos Syndrome is a group of genetic disorders that affect the body's connective tissues. Th

(Unsplash Photo) Menopause brings many changes to the body, but for people with Ehlers-Danlos Syndrome (EDS), these changes can be especially challenging. EDS is a group of genetic disorders that affect connective tissues, causing symptoms like joint hypermobility, skin elasticity, and tissue fragility. When menopause begins, hormonal shifts can influence these symptoms in ways that are not always well understood. How Menopause Affects Connective Tissue in EDS Estrogen plays

(Unsplash photo) Organ prolapse is a significant health concern for individuals with Hypermobile Ehlers-Danlos Syndrome (HEDS). This condition affects the connective tissues that support organs, leading to a range of symptoms that can severely impact quality of life. Understanding the causes and effects of organ prolapse in HEDS patients is essential for better management and improved outcomes. Organ prolapse occurs when weakened connective tissues fail to hold organs in thei

(Unsplash Photo) Living with Hypermobile Ehlers-Danlos Syndrome (HEDS) often means managing a range of symptoms that affect daily life. One area that can be particularly challenging is bladder health. Many people with HEDS experience bladder problems that can cause discomfort, inconvenience, and stress. What Causes Bladder Problems in HEDS Patients? HEDS is a connective tissue disorder characterized by joint hypermobility, skin elasticity, and tissue fragility. These features

(Unsplash Photo) Gastroparesis, a condition marked by delayed stomach emptying, presents a significant challenge for many people with Ehlers-Danlos Syndrome (EDS). Managing this digestive issue is complex, especially when considering treatments that may affect gastrointestinal motility. GLP-1 receptor agonists have gained attention for their role in managing diabetes and weight loss, but their impact on gastroparesis in EDS patients raises important questions. Gastroparesis

Spontaneous bruising, especially around the joints, is a common and often distressing symptom for people with Hypermobile Ehlers-Danlos Syndrome (HEDS). These bruises can appear without any obvious injury, raising questions about why they happen and what underlying processes cause them. Understanding the reasons behind spontaneous bruising in HEDS can help individuals better manage their symptoms and realize that it is caused by HEDS but it is nothing to be alarmed about. Wha

(Unsplash Photo) Living with Ehlers-Danlos Syndrome (EDS) presents many challenges beyond the physical symptoms. Among these, mental health concerns such as depression and anxiety are increasingly recognized as significant issues for people with EDS. Understanding how these conditions intersect can help patients, caregivers, and healthcare providers better address the full scope of living with EDS. Why Are Depression and Anxiety Common in EDS? Research shows that individuals

(Unsplash Photo) Costochondriasis, a condition causing chest wall pain, often goes unnoticed or misdiagnosed, especially in people with Hypermobile Ehlers-Danlos Syndrome (HEDS). For those living with HEDS, understanding the signs and symptoms of costochondriasis is crucial because the overlap of symptoms can complicate diagnosis and management. This post explores how costochondriasis presents in individuals with HEDS, helping readers recognize symptoms and seek appropriate c

(Unsplash Photo) Compression syndromes involving blood vessels and nerves are a significant concern for people with Hypermobile Ehlers-Danlos Syndrome (HEDS). These syndromes occur when nerves or blood vessels become compressed or pinched, leading to a range of symptoms that can affect daily life. Understanding what signs and symptoms to watch for, as well as how common these conditions are in HEDS, can help patients and caregivers manage the condition more effectively. What

(Unsplash Photo) Living with hypermobile Ehlers-Danlos syndrome (hEDS) presents many challenges, especially as individuals grow older. One area that often receives less attention is lung health. For a significant portion of the EDS population, lung deterioration becomes a serious concern with age. A lot of EDS patients are diagnosed with asthma before ever getting the diagnosis of EDS. The lung symptoms that lead to this diagnosis for these individuals are usually MCAS relate

(Unsplash Photo) Profuse sweating is a challenging symptom for many people living with dysautonomia, a disorder that affects the autonomic nervous system. This excessive sweating can disrupt daily routines, cause discomfort, and affect emotional well-being. Understanding why profuse sweating occurs in dysautonomia and how it impacts everyday life helps those affected manage their symptoms more effectively. What Is Dysautonomia and How Does It Affect Sweating? Dysautonomia ref