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The Role of Hydration and Exercise in Managing Hypermobile Ehlers-Danlos Syndrome
Hypermobile Ehlers-Danlos Syndrome (HEDS) is more than just a connective tissue disorder; it is a significant condition that can impact...
zebrathemiddleaged
Aug 143 min read
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Exploring the Connection Between Achilles Tendinopathy and Hypermobile Ehlers-Danlos Syndrome
Achilles tendinopathy is a common issue, especially among athletes and people who put regular stress on their Achilles tendons. However,...
zebrathemiddleaged
Aug 53 min read
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The Importance of Cardiologist Visits for Heart Valve and Aorta Checks in HEDS Management
Hypermobility Ehlers-Danlos Syndrome (HEDS) is a challenging condition that affects connective tissues in the body. While the focus is...
zebrathemiddleaged
Aug 53 min read
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Chasing Solitude: My Dream of Peaceful Days in Quiet Places
In today’s fast-paced world, life often feels overwhelming. All around us, noise and distractions demand our attention, leading many to...
zebrathemiddleaged
Jul 54 min read
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Unwind and Get Moving: Fun Ways to Stay Active with Loved Ones
In today's fast-paced world, it's often easy to miss out on the joy of being active, especially with loved ones. The good news? You can...
zebrathemiddleaged
Apr 222 min read
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What Does Life Look Like at 50, Alone, and Coping with an Invisible Illness?
Reaching the age of 50 can bring a mix of feelings. While some celebrate this milestone, others may find themselves navigating the...
zebrathemiddleaged
Mar 302 min read
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The Power of Connection: How Staying Active and Social Can Boost Your Happiness
In today's fast-paced world, the importance of maintaining physical activity and cultivating social connections cannot be overstated....
zebrathemiddleaged
Mar 292 min read
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Empowering Your Health: Understanding and Communicating About HEDS with Your Healthcare Providers
Navigating the complexities of health care can feel overwhelming, especially for those with Hypermobile Ehlers-Danlos Syndrome (HEDS)....
zebrathemiddleaged
Mar 263 min read
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The Hidden Strength: Embracing Vulnerability in Living with HEDS
Living with Hypermobility Ehlers-Danlos Syndrome (HEDS) is not just a medical condition. It is a multifaceted journey that involves...
zebrathemiddleaged
Mar 253 min read
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Embracing the Chaos: Finding Joy in the Unpredictable Journey with HEDS
Life can often feel like a rollercoaster, filled with sudden twists and turns. For individuals living with Hypermobile Ehlers-Danlos...
zebrathemiddleaged
Mar 232 min read
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Making the Most of Today: Navigating Life with a Partner Living with HEDS
Take advantage of the good days! Coping with the realities of a partner living with Hypermobile Ehlers-Danlos Syndrome (HEDS) can be...
zebrathemiddleaged
Mar 223 min read
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My Invisible Friend
HEDS You have always been there You were there when I was a baby cry ing alone at night You were there when I was a young girl sitting...
zebrathemiddleaged
Mar 211 min read
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Navigating the Challenges of Sleepless Nights in HEDS: Coping with Joint Instability and Headaches
Individuals living with Hypermobile Ehlers-Danlos Syndrome (HEDS) face many challenges, with sleepless nights often being one of the...
zebrathemiddleaged
Mar 183 min read
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Embracing the Unknown: Navigating the Unpredictable Nature of Chronic Illness
Living with a chronic illness can feel like wandering through an ever-changing landscape. For many, each day presents fresh challenges,...
zebrathemiddleaged
Mar 174 min read
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Wait, You Mean Your Doctor Didn't Even Know about HEDS? The Shocking Reality of Being Gaslighted by Medical Professionals
Navigating the healthcare landscape can be infuriating, especially for those suffering from hypermobile Ehlers-Danlos Syndrome (HEDS)....
zebrathemiddleaged
Mar 164 min read
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Don't Touch the Lightbulb
I didn’t have to touch the lightbulb to know that it was HOT! My friend laughed as she told me many years ago. After watching me touch a...
zebrathemiddleaged
Mar 141 min read
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FRAUD
Am I a fraud or are you just too blind to see me? Am I a fraud for needing assistance with walking some days and other days feeling like...
zebrathemiddleaged
Mar 131 min read
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Warrior
The alarm clock goes off: Ugg another day, do I have to get up? I could lie here all day! I am so tired! I do not think I slept at all...
zebrathemiddleaged
Mar 121 min read
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The Mask of a Smile
The constant smile on our faces is a mask that hides the emotion and pain that most people cannot and hopefully will never understand or...
zebrathemiddleaged
Mar 111 min read
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Is it the pain or is it just the reality? Living life with a connective tissue disease.
Some days I will say my shoulder hurts so bad I can't sleep. My husband will say, I thought it was your back that was hurting. I reply,...
zebrathemiddleaged
Mar 101 min read
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