HEDS You have always been there You were there when I was a baby cry ing alone at night You were there when I was a young girl sitting...

Individuals living with Hypermobile Ehlers-Danlos Syndrome (HEDS) face many challenges, with sleepless nights often being one of the...

Living with a chronic illness can feel like wandering through an ever-changing landscape. For many, each day presents fresh challenges,...

Navigating the healthcare landscape can be infuriating, especially for those suffering from hypermobile Ehlers-Danlos Syndrome (HEDS)....

I didn’t have to touch the lightbulb to know that it was HOT! My friend laughed as she told me many years ago. After watching me touch a...

Am I a fraud or are you just too blind to see me? Am I a fraud for needing assistance with walking some days and other days feeling like...

The alarm clock goes off: Ugg another day, do I have to get up? I could lie here all day! I am so tired! I do not think I slept at all...

The constant smile on our faces is a mask that hides the emotion and pain that most people cannot and hopefully will never understand or...

Some days I will say my shoulder hurts so bad I can't sleep. My husband will say, I thought it was your back that was hurting. I reply,...

As those of you living life with EDS know we all have good days and bad days. We want to do a lot of things that sometimes our bodies...